AAP MP Sanjay Singh
– Photo : x/AAP
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AAP MP Sanjay Singh on Friday appealed to people to contribute to a crowdfunding initiative to buy an injection worth Rs 17 crore for a child suffering from spinal muscular atrophy. Addressing a press conference, Sanjay Singh warned doctors that if a 16-month-old child does not receive the injection by the time he turns two, his life will be seriously endangered.
Vehant Jain is suffering from SMA type 2 disease. If this child is not given the injection till the age of 2 years, then the child’s life can be in danger. It is our human responsibility to help the child. The injection for this disease costs Rs 17 crore.
To save the life of Vehant Jain you can do this… pic.twitter.com/WnBxYzS1Za
— Sanjay Singh AAP (@SanjayAzadSln) June 14, 2024
Sanjay Singh said that the injection is very expensive and its cost is Rs 17 crore. If Vehant Jain does not get this injection on time till he turns two years old, he will have to face serious problems. His father is an engineer and mother is a CA, but they left their jobs to take care of the child. Sanjay Singh has appealed to the people of the country and Delhi to save the life of the child staying at home.
Sanjay Singh said, ‘Contributions from Rs 100 to Rs 1 lakh will be welcomed. Please contribute as much as you can. I appeal to you workers, BJP, Congress and other organizations to come forward. I am contributing Rs 1 lakh for this child.’ Spinal muscular atrophy is a serious disease. It causes loss of nerve cells, which transmit electrical signals from the brain to the muscles.
One Zolgensma injection used for children under two years of age suffering from SMA costs around Rs 17 crore. Gene therapy, one of the world’s most expensive drugs, offers promising results. But experts warn that it is not a sure solution for the rare nerve condition, which causes muscle wasting and weakness. It cannot cure, but limits the progression of the disease.